Our conference will cover many different aspects including:
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Plenary/Knowledge Translation Sessions
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These sessions represent lectures directed to parents of affected individuals and adults affected with MPS or a related disease. Topics will include key advances in disease pathophysiology, management and treatment best practices, current and upcoming research and clinical trials, educational and financial issues, and psycho-social issues such as dealing with grief and loss, adolescence, transition to adulthood, and independent living. There will also be opportunities for affected individuals to present their perspectives.
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Networking rooms
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Designated areas in the virtual platform will allow attendees to meet with one-another, or in groups, to discuss topics of importance or to simply catch up or get to know each other better.
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Exhibit and information booths
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Exhibitors can generate meaningful conversation with attendees. Host live discussions or demos. Display a variety of assets, including static text, logos, banners, videos and chatboxes. Conversations can be instant, a contact form or simply be a link to more information.
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Gamification
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Gamification or treasure hunt features can be integrated into the exhibit booth for additional charges (Host a friendly giveaway or raffle!) A full real-time gamification framework will log and monitor user events, trigger reward notifications, and maintain a leaderboard.
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Information Dissemination
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Information from the conference will be published in our on-line newsletter. Presentations will be posted on our website (www.mpssociety.ca), pending approval from speakers.. We plan to film interviews with doctors and other medical professionals in attendance, as well as with families representing various types of MPS.
About
Founded in 1984, The Canadian Society for Mucopolysaccharide and Related Diseases Inc. (The Canadian MPS Society) is committed to providing support to individuals and families affected with Mucopolysaccharide (MPS) and related diseases. Our bi-annual conferences give families affected by MPS & related diseases an opportunity to learn about new research, treatment and care, and to share information and experiences with other affected families and individuals. Because MPS diseases are very rare, our conferences often represent the only opportunities families have to meet others whose family members share the similar experiences.
Plenary/Knowledge Translation Sessions
These sessions represent lectures directed to parents of affected individuals and adults affected with MPS or a related disease. Topics will include key advances in disease pathophysiology, management and treatment best practices, current and upcoming research and clinical trials, educational and financial issues, and psycho-social issues such as dealing with grief and loss, adolescence, transition to adulthood, and independent living. There will also be opportunities for affected individuals to present their perspectives.
Networking rooms
Designated areas in the virtual platform will allow attendees to meet with one-another, or in groups, to discuss topics of importance or to simply catch up or get to know each other better.
Exhibit and information booths
Exhibitors can generate meaningful conversation with attendees. Host live discussions or demos. Display a variety of assets, including static text, logos, banners, videos and chatboxes. Conversations can be instant, a contact form or simply be a link to more information.
Gamification
Gamification or treasure hunt features can be integrated into the exhibit booth for additional charges (Host a friendly giveaway or raffle!) A full real-time gamification framework will log and monitor user events, trigger reward notifications, and maintain a leaderboard.
Information Dissemination
Information from the conference will be published in our on-line newsletter. Presentations will be posted on our website (www.mpssociety.ca), pending approval from speakers. We plan to film interviews with doctors and other medical professionals in attendance, as well as with families representing various types of MPS.