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Wednesday September 15, 2021:
Canadian Project Updates  

  • Keynote Speaker 

  • MPS Disease Registry Updates 

  • Newborn Screening Updates 

  • Canadian Rare Disease Drug Plan Updates 

  • Member Breakout Session 

Thursday September 16, 2021:
Research and Industry Updates 

  • Global MPS Research Updates 

  • Introduction to How Gene Therapy Works 

  • Industry Partner Updates – Clinical Trials and Gene Therapy 

  • Patient Testimonials 

Friday, September 17, 2021:
MPS Disease Management 

  • Financial Management & Registered Disabilities Saving Program 

  • Orthopedic/Musculoskeletal Management 

  • Pain & Sleep Management 

  • Neurological 

  • Behavioural Management 

  • Home Infusion Management 

Click Here to View Conference Program & Schedule

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